Physical Activity for Enterally-Fed Children: Adaptations and Precautions

Caring for an enterally-fed child involves unique considerations, and one important aspect to focus on is encouraging your child to participate in appropriate physical activities. As a parent, you want to see your child thrive and enjoy the many benefits of an active lifestyle. You may have questions about how to encourage physical activity while managing tubes and equipment or how to adapt activities to suit your child’s specific needs.

At Applied Medical Technology, Inc., we understand the intricacies of caring for a tube-fed child. We know every child is unique, and what works for one family may not work for another.

In this article, we’ll explore the importance of physical activity for enterally-fed children and share insights on adapting activities, managing tubes and equipment during play, and ensuring your child’s safety and hydration. We aim to empower you with the knowledge and tools to make informed decisions and create a positive, supportive environment for your child’s growth and development.

The Benefits of Physical Activity for Enterally-Fed Children

The Surgeon General’s report⁽¹⁾ on physical activity and health emphasizes the numerous benefits of physical activity for individuals of all ages and abilities. For children living with chronic conditions, such as those requiring enteral feeding, physical activity can play a vital role in improving their quality of life and managing their symptoms.

Research⁽²⁾ has shown that physical activity can help prevent risk factors for disease and protect against multiple chronic diseases. Regular physical activity can improve bone health, cardiorespiratory and muscular fitness, and body composition in children and adolescents.

For children living with chronic diseases, engaging in physical activity can lessen the severity of their condition, help manage or reduce symptoms, and improve mobility. This means that by encouraging your enterally-fed child to participate in regular physical activity, you’re supporting their overall health and development and helping them manage the specific challenges associated with their condition.

In addition to the physical benefits, physical activity has been associated with improved quality of life, emotional well-being, and positive mental health in children and adolescents. Some evidence suggests that physical activity can lower levels of anxiety and depression in this age group.

Adapting Activities for Enterally-Fed Children

As a parent of an enterally-fed child, you may wonder how to adapt activities to suit your child’s specific needs and abilities. The key is to focus on activities your child enjoys that align with their capabilities. These could include swimming, dancing, or even adapted sports. Don’t be afraid to get creative and think outside the box!

It is also a good idea to work closely with your child’s healthcare team, including physical and occupational therapists, to develop a safe and appropriate activity plan. They can provide valuable insights and recommendations based on your child’s needs.

When starting, it’s best to begin with shorter periods of activity and gradually increase the duration and intensity as your child builds strength and endurance. Don’t forget to consider your child’s feeding schedule—ensuring adequate time before and after physical activity can help minimize discomfort and reflux.

Managing Tubes and Equipment During Play

We know that managing tubes and equipment during physical activity can be a concern for parents of enterally-fed children. But with the right tools and techniques, you can help your child stay active and comfortable. Here are a few tips to keep in mind:

Use a reliable tube securement device, like the AMT CINCH®, to keep the feeding tube in place and prevent dislodgement during movement. This can also help enhance your child’s comfort during activity.
Consider using a low-profile gastrostomy tube, such as the MiniONE® Button, which sits flush against the skin and reduces the risk of snagging or pulling during play.
If possible, disconnect the feeding tube from the pump or gravity bag during physical activity to allow for greater freedom of movement.
Use a protective cover or clothing to shield the feeding tube and stoma site from direct impact or abrasion.

Remember, every child is different, so it may take some trial and error to find what works best for your child. Don’t hesitate to reach out to your child’s healthcare team or other parents for advice and support.

Ensuring Safety and Hydration

Of course, safety and hydration should always be top priorities when it comes to physical activity for your enterally-fed child. Here are a few key points to keep in mind:

Keep a close eye on your child during physical activity, and watch for any signs of discomfort, pain, or fatigue. If you notice any of these signs, adjust the intensity or duration of the activity as needed.
Make sure your child stays well-hydrated before, during, and after physical activity. This can be done by providing fluids through the feeding tube or orally, if permitted.
Always keep emergency supplies on hand, including extra feeding tubes, securement devices, and a hydration kit, especially when engaging in activities away from home.
Remember to educate caregivers, coaches, and teachers about your child’s specific needs and how to handle potential emergencies related to the feeding tube. This can help keep your child safe and supported in various environments.

Remember, the most important thing is that your child is having fun and enjoying the many benefits of physical activity. Celebrate their achievements, no matter how big or small, and tell them you are proud of their efforts.

Conclusion

Encouraging physical activity for your enterally-fed child can sometimes feel overwhelming. Still, by adapting activities, managing tubes and equipment effectively, and prioritizing safety and hydration, you can help your child lead an active and fulfilling life.

Our wide range of enteral feeding products, including the MiniONE® Family of Low Profile Gastrostomy Tubes and the AMT CINCH® Tube Securement Device, are designed with your child’s comfort, safety, and freedom of movement in mind. We’re committed to providing the tools and resources you need to empower your child to thrive.

Remember, you’re not alone in this journey. Our team is here to support you, and we’re always just a phone call or email away.

Disclaimer: Anything contained in this blog is general information only and is not, nor should it be interpreted to be, medical advice. Always consult with a qualified physician and/or a health care provider for medical advice.

References:

https://www.ahajournals.org/doi/10.1161/01.CIR.94.9.2045
https://www.hhs.gov/surgeongeneral/reports-and-publications/physical-activity-nutrition/walking-executive-summary/index.html