Kate’s MiniACE® Enema Button

My underlying medical condition is neurogenic bowel, which has also caused chronic constipation. Initially, my gastrointestinal doctors wanted to perform a colostomy, but another doctor had a different idea – a cecostomy tube. I originally had the Chait tube, and although the regiments were working, I was continually having leakage issues because the device sizes were not fitting my stoma site well. I was always experiencing granulation tissue and leakage, causing me to change bandages at least twice a day.

My doctors wanted to remove the Chait tube, but I said no, there must be another solution. These regiments have saved my life and gave me confidence again. I hopped on social media and joined support groups and did Google searches – sometimes until even 2 or 3 a.m. because I just knew something better had to be out there. Several people online said there was a solution, the AMT MiniACE®; the only issue was I could not find an adult who had one; I took a leap of faith and e-mailed AMT!

I reached out to parents and asked who in my state places or uses these tubes? I said to myself, “What can I lose?” I asked my medical team to reach out to the children’s hospital to see if they could refer me. This doctor was happy to help and do it himself. After getting the AM MiniACE® placed, I no longer need to wear a bandage; I have such minimal leakage.

I am still recovering from all the granulation tissue growth from the Chait tube. My regiments are better because I have something that fits my body to the exact size, and it is soft! The connection is so much better, too. It locks in with a twist. It stays in place – yes, it is a little bulkier than the Chait, but it fits, and it does not have sharp hard plastic ends. I am thankful for my cecostomy. Without it, I would still be having gastrointestinal issues or have gone through with colostomy. The MiniACE® cecostomy has given me the confidence to be productive at work and enjoy time with friends, family, and dating again. Like I have told friends and medical professionals, the MiniACE® helps me feel like I can live an everyday life again. No bandage changes and have a quality of life.